Desperate times call for desperate measures, but when a crisis involves a child, there are no limits to what a parent will do for their beloved, their pride and joy. When in doubt, plan a trip vacation to Disneyland, a place where magical memories are priceless. It was but one item on the girl's bucket list.
A story emerged recently about a 6-year-old girl named Cailee Herrell, a resident of Phoenix, Arizona. According to a Metro News report, she suffers from Familial Exudative Vitreoretinopathy (or FEVR).
The National Library of Medicine (or NIH) provides a description of the young girl's diagnosis:
"Familial exudative vitreoretinopathy is a hereditary disorder that can cause progressive vision loss. This condition affects the retina, the specialized light-sensitive tissue that lines the back of the eye. The disorder prevents blood vessels from forming at the edges of the retina, which reduces the blood supply to this tissue."
There are three clinical stages of Cailee's eye disease (1-3). The earlier FEVR is diagnosed, the better outcome. Often, a specialist in eye disorders can help a person delay progression. It's unclear what stage the young girl is in, but because her mom is racing against time, her case must be severe. The good news is for most sufferers, loss of vision peaks when a person turns 20. From then, they are usually able to "retain useful vision."
girls.are.toughThe most beautiful girl!! Happy 6th birthday my love!Instagram
A Mother's Love: The Woman Behind The Bucket List of a Lifetime
The girl's mom, Catrina Frost, posted a moving message on a GoFundMe page set up to raise money for her daughter. The family's goal is $10,000, and as of this writing, donors pledged nearly $8,200 towards Cailee's bucket list.
girls.are.tough: Cailee joined me for her first speaking engagement with the Sun Lakes Lion Club!
"We are building Cailee's memory bank with as many activities as we can before she loses any more vision. I was fortunate enough to have a very special friend who lost her vision recently explain to me that 'it's not dark, because of her memories her brain recalls images and I see quite well'.... This made me even more determined to give her as many experiences and make as many memories as possible."
"One place every princess deserves to go explore is Disneyland, Cailee has been dreaming of meeting Bell and Snow White"