Wear you jeans today and let's support Alana! #raregenesday #Repost @anambateman with @repostapp.・・・This is one of my nieces Alana. She was born with Hypophosphatemic rickets which is a form of rickets that is characterized by low serum phosphate levels and resistance to treatment with ultraviolet radiation or vitamin D ingestion. The term rickets evolved from the old English word wrick, which means “to twist.” She's such a strong girl and I'm so proud to be her Titi. Tomorrow is rare disease day so I'll be wearing jeans which is the symbol for all people with rare disease most of which we have never heard of. She lives everyday of her life with pain yet I still see her playing and trying to keep up with siblings despite of it. She's going to Miami tomorrow to attend a rare disease walk so I wanted to show her some support! I love you Nana!!!
Saturday 28th of February 2015 11:54:06 AM
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ICYMI: "Happy Valentine's Day! Sending all of you lots of #love! 💋❤️💋❤️💋❤️💋❤️💋❤️💋❤️💋❤️ #sanValentin #ValentinesDay #mylove" <a href="http://www.whosay.com/l/tNOaauq?wsref=fb" target="_blank">http://www.whosay.com/l/tNOaauq?wsref=fb</a>
Monday 16th of February 2015 07:00:57 AM